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Event Series Event Series: Patient Education – Neuro

Myelitis and Myelopathy Patient Day

July 13 @ 9:00 am 3:30 pm

People who have myelitis- or myelopathy-related conditions and their families are invited to attend the 2024 Johns Hopkins Myelitis and Myelopathy Center Patient Day in person. It is organized in collaboration with the International Center for Spinal Cord Injury at Kennedy Krieger Institute and supported by the Bart McLean Fund for Neuroimmunology Research and the Siegel Rare Neuroimmune Association (SRNA). The event is free and is held at The Johns Hopkins Hospital. Attendees are not limited to Johns Hopkins patients.

What to Expect:

  • Informative sessions with leading myelopathy experts from diverse disciplines
  • Personal stories and experiences shared by patients
  • Q&A sessions to address your concerns and questions
  • Support and networking opportunities with other attendees
  • Resource booths with helpful information and materials

Please RSVP by Monday, July 8, 2024, to confirm attendance.

Detailed Agenda:

9:00 – 9:05Opening remarksCarlos Pardo and Cristina Sadowsky
9:05 – 9:20Patient’s perspective:Carmine Sarracino, author and professor
9:20 – 9:40The spectrum of myelitis and myelopathiesCarlos A. Pardo, JHH
9:40 – 10:00What is new with MOG and NMO associated myelitisElias Sotirchos, JHH
10:00 – 10:20When myelitis and myelopathies affect childrenHaiwen Chen, JHH
10:20 – 10:40Break-Musical Break
10:40 – 11:05Bowel, Bladder, and Sexual FunctionPhilippines Cabahug MD, KKI
11:05 – 11:15Bone HealthCristina Sadowsky MD, KKI
11:15 – 11:40Pain ManagementStephanie Pham Van MD, JHH
11:40 – 12:00SpasticityTravis Edmiston MD, KKI
12:00 – 12:20Gait trainingDennis Tom-Wigfield, DPT, PT, KKI
12:20 – 1:30Round Tables + Lunch
Specific tables:
-Myelitis, NMO and mOG
-Vascular problems of the cord
-Rehabilitation strategies
1:30 – 1:45Patient’s perspective #2Julia Lefelar, MOG Project
1:45-2:05Future research in spine cord treatmentsNicholas Theodore MD, JHH
2:05-2:25CNS stimulation: spineRebecca Martin OTR/L, OTD, KKI
2:25-2:35Acute Intermittent HypoxiaKatherine Ellis PT, KKI
2:35-2:55Mental health aspects in myelitis and myelopathiesLara Collender LCSW-C, KKI
2:55 – 3:30Questions and Answers
3:30Closing remarks
1800 Orleans Street, Zayed 2117
Baltimore, Maryland 21287 United States