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Event Series:
Patient Education – Neuro
Myelitis and Myelopathy Patient Day
July 13 @ 9:00 am – 3:30 pm
People who have myelitis- or myelopathy-related conditions and their families are invited to attend the 2024 Johns Hopkins Myelitis and Myelopathy Center Patient Day in person. It is organized in collaboration with the International Center for Spinal Cord Injury at Kennedy Krieger Institute and supported by the Bart McLean Fund for Neuroimmunology Research and the Siegel Rare Neuroimmune Association (SRNA). The event is free and is held at The Johns Hopkins Hospital. Attendees are not limited to Johns Hopkins patients.
What to Expect:
- Informative sessions with leading myelopathy experts from diverse disciplines
- Personal stories and experiences shared by patients
- Q&A sessions to address your concerns and questions
- Support and networking opportunities with other attendees
- Resource booths with helpful information and materials
Please RSVP by Monday, July 8, 2024, to confirm attendance.
Detailed Agenda:
| Tme | Title | Speaker |
|---|---|---|
| 9:00 – 9:05 | Opening remarks | Carlos Pardo and Cristina Sadowsky |
| 9:05 – 9:20 | Patient’s perspective: | Carmine Sarracino, author and professor |
| 9:20 – 9:40 | The spectrum of myelitis and myelopathies | Carlos A. Pardo, JHH |
| 9:40 – 10:00 | What is new with MOG and NMO associated myelitis | Elias Sotirchos, JHH |
| 10:00 – 10:20 | When myelitis and myelopathies affect children | Haiwen Chen, JHH |
| 10:20 – 10:40 | Break-Musical Break | |
| 10:40 – 11:05 | Bowel, Bladder, and Sexual Function | Philippines Cabahug MD, KKI |
| 11:05 – 11:15 | Bone Health | Cristina Sadowsky MD, KKI |
| 11:15 – 11:40 | Pain Management | Stephanie Pham Van MD, JHH |
| 11:40 – 12:00 | Spasticity | Travis Edmiston MD, KKI |
| 12:00 – 12:20 | Gait training | Dennis Tom-Wigfield, DPT, PT, KKI |
| 12:20 – 1:30 | Round Tables + Lunch Specific tables: -Myelitis, NMO and mOG -Vascular problems of the cord -Rehabilitation strategies -Co-morbidities | Everybody |
| 1:30 – 1:45 | Patient’s perspective #2 | Julia Lefelar, MOG Project |
| 1:45-2:05 | Future research in spine cord treatments | Nicholas Theodore MD, JHH |
| 2:05-2:25 | CNS stimulation: spine | Rebecca Martin OTR/L, OTD, KKI |
| 2:25-2:35 | Acute Intermittent Hypoxia | Katherine Ellis PT, KKI |
| 2:35-2:55 | Mental health aspects in myelitis and myelopathies | Lara Collender LCSW-C, KKI |
| 2:55 – 3:30 | Questions and Answers | |
| 3:30 | Closing remarks |
